WHO WE ARE
The New York Parent Association for Deaf-Blind (NYPADB) advocates for individuals with deaf-blindness and their families by sharing resources, information and experiences.
The organization began in 1988 when a group of dedicated parents, with children who are deaf-blind, joined together to share information and support. Our initial funding came from a grant from the New York State Technical Assistance Project, NYSTAP. New York Parent Network, Inc. was registered in New York State as a recognized not-for-profit organization in 1992. NYPN gained IRS 501(c)(3) status in 2009, making contributions tax-deductible. Our Board of Directors consists of parent and professional volunteers.
In 2013, we changed our name to New York Parent Association for Deaf-Blind to better identify with the population we serve.
The New York Parent Association for Deaf-Blind is an affiliate of the National Family Association for Deaf-Blind (NFADB). NYPADB works in partnership with the New York Deaf-Blind Collaborative (NYDBC), in consultation with the National Consortium on Deaf-Blindness (NCDB) and with support from the Helen Keller National Center (HKNC).
New York Parent Association for Deaf-Blind’s Programs and Publications are supported in part by the Hilton/Perkins Program of Perkins School for the Blind in Watertown, Massachusetts. The Hilton/Perkins Program is funded by a grant from the Conrad N. Hilton Foundation of Reno, Nevada.
WHO WE SERVE
We serve families of people of all ages, who are deaf-blind, or visually and hearing impaired throughout New York State. According to NCDB, the term deaf-blind (or dual sensory loss) refers to a combination of “varying degrees of vision and hearing loss.”
The key feature of deaf-blindness is that the combination limits access to auditory and visual information. “Children with dual sensory loss require teaching methods that are different from those for children who have only hearing or vision loss. When both vision and hearing are affected, opportunities to learn, communicate, and socialize can be severely limited. More than 90% of people who are deaf-blind have additional disabilities or health problems.”
Individuals with deaf-blindness and their families face unique challenges throughout their lives. They need support to access information, resources, services, and communication technology
WHAT WE DO
- To provide a network of supportive families with whom information and resources about deaf-blindness can be shared.
- To educate the community about how vision and hearing loss affect all aspects of the life of a deaf-blind person.
- To build effective parent-professional partnerships to better educate our children.
- To advocate for people with deaf-blindness or dual sensory loss.
- We help the families gain access to the information and resources they need.
- We educate and provide information through New York Parent Network Newsletters, NYPN e-news, and printed materials.
- We provide opportunities for families to gather, socialize, gain support, and learn through our Family Learning Experiences and Parent Conferences.
- We provide information and support through monthly support group conference calls.