NEW YORK STATE DEAF-BLIND PROJECT

New York Deaf-Blind Collaborative
Queens College
Office: Klapper Hall Rm 324
Mail: Powdermaker Hall 200
65-30 Kissena Blvd.
Flushing, NY 11367
(718) 997-4856, nydbc@qc.cuny.edu
www.qc.cuny.edu/community/nydbc/

Organizations Specific to Deaf-Blindness:

AADB – American Association for the Deaf-Blind
www.aadb.org

HKNC- Helen Keller National Center
(516) 944-8900 Ext. 253 (Voice/TTY), VP: (516) 944-8908
www.hknc.org

NCDB – National Consortium on Deaf-Blindness
Info Services 800-438-9376
TTY: 800-854-7013
www.nationaldb.org/

NFADB – National Family Association for Deaf-Blind
800.255.0411 www.nfadb.org/

NYPN New York Parent Network
Barbara Loughran (516) 621-2934
bloughran@optonline.net
www.nypn.net

Perkins School for the Blind
(617) 972-7220
www.perkins.org

Usher Syndrome
www.ushersyndrome.nih.gov.

Coalition for Usher Syndrome Research
www.usher-syndrome.org/

Related Organizations:

AFB – American Foundation for the Blind
(212) 502-7600; (800) 232-5463
www.afb.org

ASHA-American Speech-Language-Hearing Association
www.asha.org

CHARGE Syndrome Foundation
800-442-7604
www.chargesyndrome.org/

Cornelia de Lange Syndrome CdLS Foundation
www.cdlsusa.org/

Early Childhood Direction Centers
www.p12.nysed.gov/specialed/techassist/ecdc/

FamilyConnect
www.familyconnect.org

NAPVI – National Association of Parents of the Visually Impaired
1-800-562-6265
www.spedex.com/napvi/

NCHAM –
National Center for Hearing Assessment & Management
www.infanthearing.org/

NCSSD – National Center on Severe & Sensory Disabilities
www.unco.edu/ncssd/news/news.shtml

The National Early Childhood Technical Assistance Center
nectac www.nectac.org/

NICHCY - National Dissemination Center for Children with Disabilities
800-695-0285: Voice and TTY
www.nichcy.org

NFB – National Federation for the Blind
www.nfb.org/

NTID PEPNet-Northeast Resources
www.pepnetnortheast.rit.edu/publication/nedirectory/index.html

Parent-To-Parent of NYS
(518) 359-3006; (866) 727-6970
www.parenttoparentnys.org

WonderBaby Blind/VI Babies & Toddlers
www.wonderbaby.org

Parent Technical Assistance Centers (PTIs)
www.parentcenternetwork.org/

List of Parent Centers in NYS
www.parentcenternetwork.org/region1/parentcenters/newyork.html

Serving families throughout the New York, except New York City:
The Advocacy Center

590 South Avenue Rochester, NY  14620
Phone: 585-546-1700 x 270
Toll Free: 800-650-4967
Fax: 585-546-7069
klein@advocacycenter.com
www.advocacycenter.com/

Serving families in Buffalo:

Parent Network of Western New York
1000 Main Street, Buffalo, NY  14202
srb@parentnetworkwny.org
Phone: 716-332-4174
Toll Free: 866-277-4762
Fax: 716-332-4171
www.parentnetworkwny.org/

Serving families in Brooklyn:

United We Stand (UWS)
594-600 Bushwick Avenue Brooklyn, NY  11206
Phone:  718-302-4313
Fax:  718-302-4315
Lourdes Rivera-Putz, Project Director email: uwsnyc@aol.com
www.uwsofny.org/

Serving families in New York City:

Advocates for Children of New York
151 West 30th Street – 5th Floor New York, NY  10001
info@advocatesforchildren.org
Phone: 212-947-9779
Fax: 212-947-9790
www.advocatesforchildren.org/

Resources for Children with Special Needs, Inc.
116 East 16th St. 5th Floor, New York, NY 10003
Phone: 212-677-4650
Fax: 212-254-4070
info@resourcesnyc.org
www.resourcesnyc.org/

Sinergia/Metropolitan Parent Center
2082 Lexington Avenue, 4th Floor New York, NY  10035
Phone: 212-643-2840
Toll Free: 866-867-9665    
info@sinergiany.org
www.sinergiany.org/

Serving families on Long Island:

Long Island Parent Center LIPC
887 Kellum Street
Lindenhurst, NY 11757
Telephone: (631) 603-3300
Toll Free: 1-(800) 432-0199
Fax: (631) 603-3303
www.liparentcenter.org/

Early Intervention & Evaluation:

Helen Keller Services for the Blind Children’s Learning Center
718-522-2122 x 324 or 321
www.helenkeller.org

Lighthouse Early Intervention Program (212) 821-9295
Westchester: (914) 683-7543
Nassau Co.: (212) 821-9616
www.lighthouse.org

NYS Preschool
Link to Approved Pre-Schools
www.p12.nysed.gov/specialed/preschool/

NY STATE AGENCIES

ACCES-VR Adult Career and Continuing Education Services-Vocational Rehabilitation
www.acces.nysed.gov/vr/

ACCES-VR Deaf & Hard of Hearing
www.acces.nysed.gov/vr/lsn/deaf.htm

Child Health Plus
Email: chplus@health.state.ny.us
www.health.ny.gov/health_care/child_health_plus/index.htm

Commission on Quality Care & Advocacy for Persons with Disabilities
http://cqc.ny.gov/

NYS Education Department
www.nysed.gov/

NYSED Special Education
www.p12.nysed.gov/specialed/

NYS Department of Health
www.health.ny.gov/

NYS Office of Mental Health
www.omh.ny.gov/

NYS Office for People With Developmental Disabilities
www.opwdd.ny.gov/

NYS Developmental Disabilities Planning Council (DDPC)
http://ddpc.ny.gov/

Commission for the Blind and Visually Handicapped CBVH
www.ocfs.state.ny.us/main/cbvh/about.asp

Telecommunications Relay Services (800) 421-1220 (V)
(800) 662-1220 (TTY); 711 (TTY)
(877) 662-4234 (Speech to Speech)

Northeast ADA Center
1.800.949.4232
Email: northeastada@cornell.edu
www.northeastada.org/

Sorenson Video Phone
www.sorensonvrs.com/?gclid=CI_7gfO9zLICFcXb4AodxW4AVw