NEW YORK STATE DEAF-BLIND PROJECT

NYDBC New York Deaf-Blind Collaborative
Queens College
Office: Klapper Hall 324
Mail to: Powdermaker Hall 200
65-30 Kissena Blvd
Flushing NY 11367
Samuel Morgan, Project Director (718) 997-4853
Samuel.Morgan@qc.cuny.edu
www.qc.cuny.edu/pdfs/nydbc.pdf

ORGANIZATIONS SPECIFIC TO DEAF-BLINDNESS

AADB – American Association for the Deaf-Blind
www.aadb.org

CHARGE Syndrome Foundation
800-442-7604
www.chargesyndrome.org

Helen Keller National Center (HKNC)
(516) 944-8900 Ext. 253 (Voice/TTY)
(516) 944-8908 (VP)
www.hknc.org

National Consortium on Deaf-Blindness (NCDB)
Info Services 800-438-9376
TTY: 800-854-7013
Includes former DB Link
www.nationaldb.org/ISDefault.php

Deaf-Blind Perspectives
www.tr.wou.edu/tr/dbp

National Family Association for Deaf-Blind (NFADB)
1-800-255-0411
www.nfadb.org

Perkins School for the Blind
(617) 972-7220
www.perkins.org

Contact Barbara Mason at 617-972-7502 or Barbara.Mason@perkins.org for information about the Perkins Deafblind Program.

Usher Syndrome Web Site
www.ushersyndrome.nih.gov

RELATED ORGANIZATIONS

American Foundation for the Blind (AFB)
(212) 502-7600; (800) 232-5463
www.afb.org

American Speech-Language-Hearing Association (ASHA)
www.asha.org

National Association of Parents of the Visually Impaired (NAPVI)
1-800-562-6265
www.spedex.com/napvi

National Center on Severe & Sensory Disabilities (NCSSD)
www.unco.edu/ncssd/news/news.shtml

National Federation for the Blind (NFB)
www.nfb.org/nfb/default.asp?SnID=820201117

National Information Center for Children & Youth with Disabilities (NICHCY)
800-695-0285: Voice and TTY
www.nichcy.org

National Technical Assistance Center
1-800-248-0822
www.taalliance.org/about/index.asp

NTID PEPNet-Northeast Resources (formerly NETAC)
www.netac.rit.edu/publication/nedirectory/

ORGANIZATIONS FOR PARENTS

Early Childhood Direction Centers
Resources serving children birth to 5
Elaine Gervais, Associate Spec/Ed
(518) 486-7462
www.vesid.nysed.gov/lsn/ecdc/

The Family Resource Network, Inc
(Serving Otsego, Chenango, Delaware, Broome, Tioga, and Tompkins counties)
Pam Larsen, Director
(607) 432-0001; (800) 305-881
www.familyrn.org

Parent-To-Parent of NYS
Janice Fitzgerald, Executive Director
(518) 359-3006; (866) 727-6970
www.parenttoparentnys.org

Resources for Children with Special Needs, Inc.
Rachel Howard, Executive Director
www.resourcesnyc.org
Database on the Web: www.resourcesnycdatabase.org

Sinergia Metropolitan Parent Center
Myrta Cuadra-Lash, Director
(212) 643-2840; (866) 867-9665

http://www.sinergiany.org

New York State Agencies

New York State Regional Transition Coordination Site Network

http://www.vesid.nysed.gov/specialed/transition/tcslist.htm