Resource Organizations

NEW YORK STATE DEAF-BLIND PROJECT

New York Deaf-Blind Collaborative
Queens College
Office: Klapper Hall Rm 324
Mail: Powdermaker Hall 200
65-30 Kissena Blvd.
Flushing, NY 11367
718-997-4856, nydbc@qc.cuny.edu
www.qc.cuny.edu/community/nydbc/

Organizations Specific to Deaf-Blindness:

AADB – American Association for the Deaf-Blind
www.aadb.org

HKNC- Helen Keller National Center
(516) 944-8900 Ext. 253 (Voice/TTY), VP: (516) 944-8908
www.hknc.org

NCDB – National Center on Deaf-Blindness
Info Services 800-438-9376
TTY: 800-854-7013
www.nationaldb.org/

NFADB – National Family Association for Deaf-Blind
800.255.0411 www.nfadb.org/

NYPADB – New York Parent Association for Deaf-Blind
Barbara Loughran (516) 621-2934
bloughran@optonline.net
www.nypn.net www.nypadb.org

Perkins School for the Blind
(617) 972-7220
www.perkins.org

Coalition for Usher Syndrome Research
www.usher-syndrome.org/

Related Organizations:

AFB – American Foundation for the Blind
(212) 502-7600; (800) 232-5463
www.afb.org

AFB Career Connect
www.afb.org/Section.asp?SectionID=7

ASHA-American Speech-Language-Hearing Association
www.asha.org

CHARGE Syndrome Foundation
800-442-7604
www.chargesyndrome.org/

Cornelia de Lange Syndrome CdLS Foundation
www.cdlsusa.org/

Early Childhood Direction Centers
www.p12.nysed.gov/specialed/techassist/ecdc/

FamilyConnect
www.familyconnect.org

Jewish Guild Healthcare (Lighthouse Guild International)
800-284-4422
www.jgb.org/

NAPVI – National Association of Parents of the Visually Impaired
1-800-562-6265
www.spedex.com/napvi/

NCHAM –
National Center for Hearing Assessment & Management

www.infanthearing.org/

NCSSD – National Center on Severe & Sensory Disabilities
www.unco.edu/ncssd/news/news.shtml

The National Early Childhood Technical Assistance Center
nectac
www.nectac.org/

NFB – National Federation for the Blind
www.nfb.org/

NTID PEPNet-Northeast Resources
www.pepnetnortheast.rit.edu/publication/nedirectory/index.html

Parent-To-Parent of NYS
(518) 359-3006; (866) 727-6970
www.parenttoparentnys.org

PRISMS, Inc – Parents and Researchers Interested in Smith-Magenis Syndrome
www.prisms.org

WonderBaby
www.wonderbaby.org

Parent Technical Assistance Centers (PTIs)
www.parentcenternetwork.org/

List of Parent Centers in NYS
www.parentcenternetwork.org/region1/parentcenters/newyork.html

Early Intervention & Evaluation:

Helen Keller Services for the Blind Children’s Learning Center
718-522-2122 x 324 or 321
www.helenkeller.org

Lighthouse Early Intervention Program
NYC (212) 821-9295
Westchester: (914) 683-7543
Nassau Co.: (212) 821-9616
www.lighthouse.org

NYS Preschool
Link to Approved Pre-Schools
www.p12.nysed.gov/specialed/preschool/

NY STATE AGENCIES

NY STATE AGENCIES

ACCES-VR Adult Career and Continuing Education Services-Vocational Rehabilitation
www.acces.nysed.gov/vr/
Coordinator of Deaf and Hard of Hearing Services
ACCES-VR Central Office
(518) 474-5652 (V) (518) 486-3773 (TTY)

Child Health Plus coverage through the New York State of Health Marketplace:
https://nystateofhealth.ny.gov/

Medicaid in New York State
www.health.ny.gov/health_care/medicaid/

NYS Justice Center
www.justicecenter.ny.gov/
1-855-373-2122

Early Childhood Direction Centers
www.p12.nysed.gov/specialed/techassist/ecdc/locations.htm

NYS Education Department
www.nysed.gov/

NYSED Special Education
www.p12.nysed.gov/specialed/

NYS Department of Health
www.health.ny.gov/

NYS Office for People With Developmental Disabilities
www.opwdd.ny.gov/

NYS Developmental Disabilities Planning Council (DDPC)
http://ddpc.ny.gov/

NYS Commission for the Blind
www.ocfs.state.ny.us/main/cbvh/
1- 866- 871-3000 TTY: 1- 866- 871-6000

Parent Technical Assistance Center Network
linked to PTIs Parent Training & Information Centers
www.parentcenternetwork.org/

WEBINARS & WEBCASTS

CHARGE Syndrome Webinars
http://chargesyndrome.org/resources.asp#webinars

NFADB Webinars
www.nfadb.org/Products.html

NCDB Webinars
www.nationaldb.org/NCDBProducts.php?prodCatID=90

Perkins Webcasts & Webinars
www.perkins.org/resources/

PUBLICATIONS

Deafblindness Publication and Resources
www.perkins.org/resources/educational-publications/deafblindness-educational-service-guidelines/

A Guide to Services for Individuals Who Are Deaf–Blind www.ocfs.state.ny.us/main/publications/pub4805text.asp



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